The Patients Speak

BSB Media

Interviews with executives at innovative healthcare companies on what they hear from patients they serve. And how their innovations will improve the patient’s journey. Our podcast is unique because it combines Business innovation with the Patient angle. - Patient insights - The process/approach to solutions - How patients are involved in development - Product/service/device innovations - How to accelerate a patient's journey - What is needed to elevate or advance innovation - Future vision read less
Health & FitnessHealth & Fitness

Episodes

Dr. Michelle Griffin, MFG Health Consulting, on advancing women’s health
Dec 6 2023
Dr. Michelle Griffin, MFG Health Consulting, on advancing women’s health
Welcome back to The Patients Speak podcast, where today's focus is on improving women's health through empowerment, education, and collaboration between patients and health providers.Michelle Griffin Michelle's Website @thedrcalled on Instagram 1. **Introduction to Dr. Michelle Griffin** - Dr. Michelle Griffin, a doctor, health educator, strategist, and business advisor with a unique perspective gained from almost 20 years as an OBGYN and a startup advisor. - Discussion on the changing landscape of overall health, particularly in women's health.2. **Patients' Needs and Effective Healthcare** - Dr. Griffin emphasizes the importance of understanding patients' wants, needs, and effectiveness to truly improve women's healthcare. - The dynamic nature of women's health, spanning from consumers seeking products to patients in need of expert medical intervention. - Quote from Dr. Michelle: "We're only going to be successful in increasing and improving the standard of women's healthcare by really examining what patients want and what they need."3. **Challenges and Gaps in Women's Health** - Exploring the challenges faced by companies aiming to address the diverse needs of women in healthcare. - The complexity of women's health, involving biological, social, and psychological factors. - Quote from Dr. Michelle: "Healthcare is complex, and it's not about the next shampoo that's going to make your hair feel really clean and shiny."4. **Clinical Trials and Gender Representation** - Highlighting the underrepresentation of women in clinical trials and the need for a broader perspective in protocol development. - Discussing the lack of research understanding around women's normal health before addressing abnormalities. - The necessity of increased funding for women's health research and the importance of gender-specific considerations in clinical trials.5. **Implications for Drug and Medical Device Development** - Dr. Griffin emphasizes the urgency in women's health, urging the industry not to reinvent the wheel but build on existing knowledge. - A focus on technology that addresses the impact on end-users, providing solutions that genuinely improve women's lives. - Quote from Dr. Michelle: "We need to look at things completely differently and everything that we did think was true... we need to look at this completely differently."6. **Physician-Patient Communication and Empathy** - Exploring the challenges physicians face within limited consultation times and the emotional toll of effective communication. - Importance of active listening, acknowledging patients' concerns, and transparency in physician-patient interactions. - Dr. Michelle shares her approach of using the ICE model (Ideas, Concerns, Expectations) to facilitate patient communication.7. **Role of Technology in Improving Consultations** - The potential role of technology in helping patients collect and present information, making consultations more efficient and focused. - Addressing the need for emotional and mental support for physicians dealing with intense, short patient interactions. - Dr. Michelle's encouragement for patients to bring recorded information, diaries, and notes to consultations.8. **Closing Thoughts and Call to Action** - Dr. Griffin concludes by emphasizing the need to recognize the uniqueness of women's health and the collective responsibility to improve healthcare standards. - Encouragement for patients to communicate and advocate for themselves, and for healthcare professionals, researchers, and others to actively seek ways to enhance women's...
Hallett, Maitri, and Brown:  panel discussion on Mental Health Counseling
Nov 29 2023
Hallett, Maitri, and Brown: panel discussion on Mental Health Counseling
Elevating Mental Health PracticesWelcome back to "The Patients Speak," where we bridge healthcare innovation with the patient voice. In this episode, our diverse panel dives deep into the complexities of mental health. Mark introduces Maggie Hallett, Senior Director at Mental Health America of Ohio; Jess Maitri, of YoThera Method in Boise; and Wayne Brown, a licensed clinical social worker in Buffalo.Key Topics:Mental Health in the WorkplaceMaggie sheds light on Mental Health America's role, emphasizing creating healthy work cultures and peer recovery support programs.Holistic Therapeutic ApproachesJess discusses her Yothera method, incorporating body, mind, and spirit into therapy, addressing the need for non-traditional approaches.Challenges of Community Mental HealthWayne highlights issues in community mental health, including burnout, lack of continuity, and the struggle to serve overwhelming caseloads.Importance of Joy in TherapyThe panel stresses the need for joy in therapy, shifting the focus from problems to joy and emphasizing the emotional investment therapists bring.Elevating Mental Health PracticesThe discussion touches on the necessity of valuing mental health professionals, ensuring fair pay, supportive work environments, and empowering therapists to choose fulfilling specialties.Quotes:Maggie Hallett: "When you create an environment in which people can actually take care of themselves, that they're paid enough... you are not leaving your stresses at the door when you walk in."Jess Maitri: "What's lacking in the therapeutic process is joy. It's more joy. It's actually bringing joy... helping them realize that they can still access joy."Wayne Brown: "They have the right, they have the obligation to find the therapist who's going to most meet their needs... we have to be true to ourselves and really do our best practice."This insightful conversation calls for a shift in mental health practices, emphasizing the need for joy, individualized care, fair compensation, and supportive work environments. Join us in our next episode of "The Patients Speak" as we continue to explore and advocate for the patient's voice in healthcare. Thank you for listening.BSB Media
Douglas Slakey, MD author on patient-centric processes
Nov 15 2023
Douglas Slakey, MD author on patient-centric processes
Welcome to another enlightening episode of "The Patients Speak." I'm your host, Mark Stinson, and today we're diving deep into the intricacies of healthcare processes, focusing on patient empowerment and improved experiences. Our special guest is Dr. Doug Slakey, a renowned transplant surgeon, educator, healthcare professional, and administrator. He's also the author of the thought-provoking book, "The Process Manifesto."Patient-Centered CareOur conversation kicks off by stressing the importance of patient-centered care. Dr. Slakey emphasizes that patients should be seen not just as cases but as individuals on unique health journeys. A patient's perspective often differs significantly from the healthcare system's, and understanding this shift is crucial. "We have to realize that at some point in our lives, each of us is a caregiver and each of us is a patient, and it really is a continuum."Compassion in HealthcareWe explore the role of compassion in healthcare. Compassion, Dr. Slakey argues, is action-oriented and a foundational element that should guide interactions between patients and healthcare providers. It fosters communication, empathy, and a more human-centered approach to care. "Compassion is action-oriented. It's about recognizing individual needs and providing care that extends beyond mere empathy."Empowering PatientsDr. Slakey stresses the importance of patients actively participating in their healthcare journey. Patients should educate themselves, ask questions, and clearly articulate their expectations. Additionally, they can play a more proactive role by sharing personal context that may affect their care.Outcome-Oriented CareShifting from traditional process-centric care, we delve into the importance of measuring patient outcomes. This involves evaluating whether patients are achieving their desired health goals. Outcome-based care holds the potential to realign payment models and drive improvement in healthcare processes.Aligning Processes with Patient ExpectationsAligning healthcare processes with patient expectations is the key to success. Dr. Slakey highlights that healthcare providers should be transparent in communicating the journey, so patients can actively participate in their care and understand what's happening at each stage.Decentralizing ControlA vital call to action is the decentralization of control in healthcare. Placing control at the front lines, where providers directly interact with patients, enables the use of knowledge, education, compassion, and empathy to create positive change in the patient experience.The conversation with Dr. Slakey reinforces that healthcare is a multifaceted journey and that acknowledging the patient's voice, experiences, and expectations is pivotal. With continuous quality improvement and a patient-centric approach, we can reshape the healthcare landscape to ensure better outcomes, more compassionate care, and enhanced patient experiences.Douglas Slakey Dr. Douglas Slakey is an internationally recognized transplant surgeon, educator, author, healthcare professional, and administrator. Doug is currently a professor of surgery at the University of Illinois, Chicago, and the president of Process Health Consulting, a healthcare consultancy focused on enhancing and optimizing operations and process flow, emphasizing complex system management strategies that optimize patient outcomes. He is a global educator and speaker who inspires healthcare teams to provide effective, compassionate patient care. Douglas's Website @d3slakey on Instagram Join us in our next episode of "The Patients Speak" as we continue to explore and advocate for the patient's voice in healthcare. Thank you for listening.BSB Media
Chuck Rinker, of iHealthAssist, a cancer survivor and tech CEO
Nov 8 2023
Chuck Rinker, of iHealthAssist, a cancer survivor and tech CEO
Welcome back to another enlightening episode of "The Patients Speak" with Mark Stinson, where we fuse the realms of healthcare business and scientific innovation with the patient's voice to expedite their journey from diagnosis to wellness. Today, we're thrilled to have Chuck Rinker, a colon cancer survivor and the CEO of Prsonas, a company that pioneers a unique blend of human and AI technologies to enhance patient engagement and communication.Chuck's journey, from the world of EA Sports and gaming to his current role, is intriguing. His personal experiences as a patient and caregiver have informed his mission to create more personal patient communication. As Chuck explains, their technology is designed to focus on patient needs and is set to revolutionize healthcare in several ways.Chuck says, "From clinical outcomes to operational efficiencies, we've overlooked the impact on the patient's mental state and journey. Prsonas with a purpose, as we call it, fills the gap in healthcare technology."Prsonas' technology introduces digital communication avatars that improve the patient experience across various healthcare settings. A remarkable use case is helping patients navigate the labyrinthine hospital environment. In this role, the avatars serve as digital wayfinders and concierge services, ensuring patients can find their way, whether they speak English, Spanish, or even sign language. They make the healthcare system less burdensome for both patients and the staff.Chuck adds, "The ultimate goal is to provide a concierge service that speaks your language, is culturally sensitive, and helps you navigate the complex healthcare system."But what can healthcare learn from large corporations like Disney and Wrangler, who've mastered brand intimacy and one-on-one marketing? Chuck asserts that the healthcare system needs to shift its focus from treating patient populations to treating patients as individuals. Achieving brand intimacy, where patients feel represented, heard, and cared for, is key to retaining and attracting patients.Chuck's personal journey has fundamentally reshaped his work at Prsonas. Being thrust into the whirlwind of information and disinformation when facing a critical illness, Chuck was determined to place the patient at the center of healthcare technology. This shift in focus, from commercial success to patient success, led to the birth of "Personas with a Purpose."And what does Chuck say to his teams to ensure they maintain a patient-centric focus? He highlights the importance of creating a gaming-like experience, where each patient feels represented, cared for, and heard, rather than selling products. By creating an advocate who communicates on a personal level, healthcare can shift from focusing on patient populations to treating patients one-on-one.Chuck Rinker's story is an inspiring example of how personal experience and dedication can drive innovation in the healthcare field. You can find out more about Prsonas at ihealthassist.com and prsonas.com to explore their innovative solutions and philosophy.Chuck Rinker Chuck's Website @cjrinker on Instagram Chuck on YouTube At "The Patients Speak," we believe that embracing medical innovation and new technologies, combined with listening to patients' stories, is the path to better healthcare. BSB Media
Ken Dychtwald PhD, AGE WAVE on aging with curiosity
Nov 1 2023
Ken Dychtwald PhD, AGE WAVE on aging with curiosity
In this podcast interview on "THE PATIENTS SPEAK" with Mark Stinson, Ken Dychtwald, author, thinker, and philosopher, discusses his latest book, "Radical Curiosity," and his lifelong exploration of aging and purposeful living. Here's a summary of the key points covered:- Ken Dychtwald is a renowned thinker and author with a deep interest in aging and the quest for a purposeful life.- "Radical Curiosity," his latest book, delves into the concept of curiosity as a driver of innovation and personal growth.- Dychtwald believes that traditional success measures often miss the point, emphasizing the importance of curiosity for true innovation.- He highlights the need for a deeper kind of curiosity, one that explores profound questions about life, death, reinvention, and imagination intelligence.- Dychtwald suggests that curiosity should be emphasized in schools, companies, and families as a crucial value.- He shares his journey and insights, emphasizing that his books aren't just autobiographies but reflections on how to think differently.- Key lessons he imparts include not accepting the status quo, being open to creativity, and seeking out creative thinkers.- Dychtwald advocates for making an impact in unoccupied territories rather than competing in saturated fields.- He reflects on the shift from a youth-dominated culture to an aging one and the need for new perspectives on aging.- Dychtwald believes in the importance of balancing professional success with personal relationships and cherishing moments with family.- He mentions a mentor, Houston Smith, who emphasized the simple lesson of being kinder in life.- Looking forward, Dychtwald remains passionate about aging, geroscience, and advocating for equitable access to healthy longevity.Ken Dychtwald's interview provides valuable insights into the importance of curiosity, reinvention, and purpose throughout life, especially as we navigate the complexities of aging and personal fulfillment.
Dr. Fred Grossman, Coya Therapeutics on ALS research
Oct 25 2023
Dr. Fred Grossman, Coya Therapeutics on ALS research
In this podcast interview with Dr. Fred Grossman, President and Chief Medical Officer of Coya, the following key points were discussed:- The podcast, "The Patients Speak," aims to bridge the gap between healthcare science and the patient perspective.- Dr. Grossman highlighted the significant unmet needs in conditions like ALS and Alzheimer's disease, emphasizing the personal impact on patients and their families.- ALS (Lou Gehrig's disease) is a rapidly progressive neurodegenerative disease that affects muscle function, speech, and respiration, with a high fatality rate.- Alzheimer's disease is also a devastating condition, and patients and their families are eagerly seeking treatments.- The discussion touched on the importance of considering patients' perspectives on daily activities, which are greatly affected by these conditions.- Dr. Grossman emphasized the need for objective measures in clinical trials while acknowledging the importance of subjective input from patients and their families.- Patients' altruism and desire to contribute to research were highlighted as essential drivers in clinical trials.- Dr. Grossman discussed Coya's focus on regulatory T cells (Tregs) as a key cellular target in treating ALS due to their role in regulating inflammation.- Coya's treatment, Coya 302, aims to increase the number and function of Tregs to stabilize the immune system and halt ALS progression.- The potential impact of Coya 302 was discussed, with the aim of prolonging survival and improving patients' quality of life.- Dr. Grossman mentioned that Coya is planning a large-scale study for Koya 302 with a potential start in six months.- Collaboration with patient advocacy groups and the Healy Platform Trial was highlighted as a way to involve patients in research and speed up progress.- The importance of clear and honest communication between patients and healthcare providers was emphasized, with patients having the right to know what to expect in their condition.Fred's Website BSB Media
Dr. Jay Shah, Chief Medical Officer at Aktiia on wearable BP monitoring
Oct 18 2023
Dr. Jay Shah, Chief Medical Officer at Aktiia on wearable BP monitoring
In this podcast interview with Dr. Jay Shah, Mark highlights these key points:- The shift from a healthcare-centric system to a patient-driven system over the last few decades.- The evolution of healthcare from a physician-centric model to patient-centered care, and finally, to a patient-driven approach.- The role of technology in empowering patients with control over their healthcare data and decisions.- The importance of transparent pricing models and the ability for patients to compare and choose their healthcare services.- The focus of Aktiia, Dr. Shah's current company, on hypertension monitoring using wearable technology.- The significance of continuous blood pressure monitoring in managing chronic diseases like hypertension.- The potential for direct-to-patient and enterprise adoption of devices like Aktiia's for better healthcare management.- The challenges and opportunities in the digital health device industry, emphasizing the importance of accuracy and trust in data.- How digital health tools can enhance the patient-physician relationship by providing continuous, reliable data.- Dr. Shah's advice to patients to be proactive, prepared, and empowered in managing their health in collaboration with their healthcare providers.Dr. Shah highlights the importance of patients taking an active role in their healthcare journey and using technology as a tool to optimize their health. He also emphasizes the need for trustworthy and validated digital health devices to build trust between patients and physicians.Dr. Jay's Website Jay is a seasoned physician leader with over 15 years of progressive and diverse experiences in the medical field and is currently helping Aktiia improve hypertension diagnosis, monitoring, and treatment as the Chief Medical Officer. BSB Media
Brittany Blair, Patient Strategy and Solutions, UCB
Oct 11 2023
Brittany Blair, Patient Strategy and Solutions, UCB
Innovating Patient Care: A Conversation with Brittany Blair, Head of Patient Strategy and Solutions at UCBIntroduction:Welcome back to "The Patients Speak," where we blend the realms of healthcare innovation, science, and the invaluable patient perspective. In this episode, we're joined by Brittany Blair, Head of Patient Strategy and Solutions at UCB, a pharmaceutical company committed to understanding and serving patients better. Let's dive into the insights Brittany shares about the importance of listening to patients and translating their emotions into actionable insights.Understanding the Patient:Brittany emphasizes the significance of recognizing the hidden truths and emotions that drive patient behavior. It's not just about gathering data but understanding the underlying emotions. She advocates for disciplined research into the customer or patient, delving beneath surface-level responses.Leveraging Emotional Insights:Patients often express their need to be heard and understood. Brittany explains how her team translates these emotions into actionable insights. They gather and theme data, focusing on emotional drivers, and use these insights to develop solutions that genuinely cater to patient needs.Co-Creation with Patients:UCB takes a unique approach by involving patients in the creation of materials intended for them. Instead of relying solely on internal development, they collaborate directly with patients. This fosters authenticity and ensures that the final products truly resonate with the intended audience.The Power of Education:Education plays a vital role in patient empowerment. Brittany discusses the importance of educating patients about their conditions and treatment options. Patients are increasingly seeking information, and pharma companies can contribute by providing educational resources that are easily accessible and authentic.Access to Treatment:Ensuring patients can access and afford treatments is a critical challenge. UCB addresses this issue by providing nurse navigators who help patients overcome logistical barriers. These navigators guide patients through the complex process of obtaining specialty medicines.The Role of Digital Health:Brittany highlights the potential of digital health in bridging gaps in the patient journey. She discusses the importance of connecting different phases of the patient journey, from pre-prescription to post-prescription. Additionally, she sees opportunities for pharma companies to partner with digital therapeutics providers to enhance patient care.Innovations in Listening:Brittany encourages companies to not only gather data through social listening but also take swift action based on insights. She emphasizes the value of periodic interactions with patients to gain a deeper understanding of their needs. Listening and acting promptly can make a significant impact on patient support.Key Messages for UCB:When asked about the key messages she'd deliver to UCB executives, Brittany emphasizes the need for investment in generating awareness for immunology products. She stresses the importance of maintaining balance among various stakeholders and disciplines in strategic choices. Lastly, she highlights the emotional aspect, mentioning that eliciting goosebumps is the ultimate goal to motivate patient action.Closing Thoughts:Brittany's insights emphasize the importance of staying connected with patients, advocating for their needs, and continuously improving patient care. "The Patients Speak" will continue to explore healthcare innovation and patient perspectives in upcoming episodes.Thank you for joining us on another insightful episode of "The Patients Speak." We'll be back with more conversations with healthcare leaders, patient advocates, and medical researchers dedicated to making a difference.
Rob Oliver, Perspectives on Healthcare, discusses Patient Empowerment
Oct 4 2023
Rob Oliver, Perspectives on Healthcare, discusses Patient Empowerment
In this episode of "The Patients Speak" podcast, host Mark Stinson interviews Rob Oliver, a speaker, podcaster, and patient advocate. Rob recently set a Guinness World Record for conducting a marathon interviewing session of 137 interviews in the field of healthcare. Rob's work focuses on capturing patient perspectives and insights to improve healthcare experiences. Here are key highlights from Rob's work:1. **Listening to Patients**: Rob's interviews with patients reveal a recurring theme – patients want their medical providers to truly listen to them. Patients often feel that their symptoms and experiences are overlooked due to time constraints and other pressures faced by medical professionals.2. **Individualized Care**: Rob emphasizes the importance of personalized care plans. Patients have diverse needs and circumstances, and medical professionals should tailor their approaches to account for these differences. A single diagnosis can affect individuals in unique ways.3. **Patient Empowerment**: Rob's own healthcare journey has taught him the importance of self-advocacy. Patients should not be afraid to express their concerns, ask questions, and propose solutions. Communication between patients and healthcare providers should be collaborative and respectful.4. **Holistic Approach**: Medical professionals often get fixated on a diagnosis, neglecting other aspects of a patient's life. Rob stresses the significance of viewing patients as whole individuals with lives that extend beyond their medical conditions. Considering social, emotional, and lifestyle factors is crucial for comprehensive care.5. **Healthcare Executives' Role**: Rob advises healthcare executives to remember that patients are people with multifaceted lives. The focus should be on helping patients regain their quality of life, rather than just addressing medical conditions. Executives should prioritize patient-centered care, involving patients in decision-making, and supporting healthcare providers to provide holistic care.Rob plans to compile the insights gathered from his interviews into a book that will provide valuable perspectives from patients to help medical professionals enhance the quality of healthcare services.For more insightful discussions on patient experiences and healthcare improvement, listeners are encouraged to tune into "Perspectives on Healthcare," Rob Oliver's podcast.Rob's Website Rob on YouTube @yourkeynoter on Instagram @yourkeynoter on Instagram Hosted by Mark Stinson, and produced by BSB Mediawww.BioscienceBridge.com
Ben Stephen, CEO of Corventive on heart disease prevention
Sep 27 2023
Ben Stephen, CEO of Corventive on heart disease prevention
In this episode of "The Patients Speak" podcast, Mark Stinson engages in a conversation with Ben Stephen, the founder and CEO of Corventive, a company focused on addressing heart disease through innovative health technologies. Here are the key highlights of Ben's work discussed in the podcast:Personal Experience and Mission: Ben Stephen shares his personal experience with heart disease, which led him to develop Corventive. He emphasizes that heart disease is a significant problem, being the leading cause of death in the United States and globally. Ben's mission is to improve heart disease prevention and diagnosis.Heart Disease Identification: Corventive is building analytic software that can analyze existing medical tests routinely done for other reasons to identify patients at risk for heart disease. By examining unstructured data within radiology reports, the software can identify specific information that might signal a patient's risk.Leveraging Existing Data: The software leverages experience from various medical tests, such as mammograms and CT scans, that patients already receive. It aims to help physicians identify patients at risk for heart disease based on overlooked information within these reports.Early Screening Tool: Corventive's solution serves as an early screening tool that can identify patients at risk before they experience severe heart events. The software's findings can guide discussions between patients and healthcare providers about preventive measures and further testing.Implications for Clinical Trials: The software's capability to identify patients at risk for heart disease could also benefit clinical trials, helping identify potential candidates for testing new medications and medical devices for heart-related conditions.Throughout the conversation, Ben emphasizes the importance of prevention in healthcare and the need for innovative technology to help physicians identify patients at risk for various diseases, ultimately aiming to save lives and improve patient outcomes.Ben's Website Ben on YouTube
RJ Kedziora, Estenda Solutions on Digital Health Innovation
Sep 20 2023
RJ Kedziora, Estenda Solutions on Digital Health Innovation
Welcome back, friends and colleagues, to the latest season and newest series of interviews on our podcast, "The Patients Speak." Today, I'm excited to have a conversation with RJ Kedziora, who is deeply involved in the digital health sector, specializing in data analytics and software development that impact the patient's journey.RJ's company, Estenda Solutions, has a focus on patient-centered innovation in the digital health space. Key highlights of RJ's work include:1. **Empowering Chronic Condition Management:** Estenda Solutions began by developing diabetes management solutions, recognizing that chronic conditions like diabetes can be significantly managed through patient behaviors. RJ emphasizes that proactive management can enhance well-being.2. **Technological Progress:** Over the years, advancements in technology have transformed health management. Continuous glucose monitoring (CGM) has evolved from 15-minute intervals to real-time data, enabling patients to understand their bodies' responses and make informed choices.3. **Comprehensive Patient Insights:** RJ discusses the importance of integrating biometric data with behavioral and clinical information. Creating a holistic view of each patient's journey enables better care, encouraging healthier behaviors, and personalized treatment plans.4. **Digital Therapeutics:** RJ introduces the concept of digital therapeutics, elevated digital health applications supported by clinical trials and regulatory approval. These applications can be prescribed by healthcare providers and even reimbursed by insurance, showcasing a shift toward more comprehensive digital interventions.5. **Promoting Patient Engagement:** Estenda Solutions fosters empathy within its team by educating members about patients' conditions and experiences. The focus on empathy encourages developers to create software that truly addresses patients' needs and enhances their engagement with their own healthcare.RJ also highlights the continuous evolution of technology, predicting that digital tools will seamlessly integrate into patients' lives, aiding them on their wellness journeys. The use of AI further expands the capabilities of these tools, providing exciting prospects for improving patient understanding and care.Join us next time as we continue to explore conversations with healthcare leaders, patient advocates, medical professionals, and researchers about the insights gained when "The Patients Speak."Hosted by Mark Stinson, and produced by BSB Mediawww.BioscienceBridge.comRJ 's Website RJ on YouTube @estendasolutions on Instagram BSB Media
Jeanne-Mari Retief, CEO of Figgi Beauty, on her journey with Panic Disorder
Sep 13 2023
Jeanne-Mari Retief, CEO of Figgi Beauty, on her journey with Panic Disorder
Welcome back to a new season of "The Patients Speak," where we're committed to listening to patients' stories and journeys, beyond just the medical aspect. In this episode, we're joined by Jeanne-Mari Retief, CEO of Figgi Beauty and Healthcare, to discuss her experiences with panic disorders and anxiety, and how these challenges have intersected with her business journey. When Jeanne turned 35, she experienced great change, contemplation, confusion, frustration, and joy. She invested so much of her energy in becoming an expert in her field, but realized that the career she had built with a single-minded focus no longer fulfilled or inspired her. It was a confusing and frightening realization. Facing a health and soul crisis she decided to make a big change. She integrated her human rights background into FIGGI which allowed her to seek serenity and still experience the adrenaline rush of creating something new. This is what FIGGI is to her! It is her Best Life – It is her FIGGI Life. Jeanne shares how she was diagnosed with panic disorder after a frightening episode while traveling. She emphasizes the difficulty of conveying the complex nature of panic disorder to others, as it goes beyond mere stress or anxiety and impacts various aspects of daily life. She recalls a doctor's insensitive response that greatly affected her and highlights the need for medical professionals to approach patients with compassion and understanding, especially during vulnerable moments.Discussing her pivot to create Figgi Beauty, Jeanne explains how her personal struggles with skin sensitivity due to anxiety-related symptoms led her to develop a skincare line. The brand represents self-acceptance and offers a holistic approach to self-care for individuals in high-stress professions.Throughout the conversation, Jeanne emphasizes the importance of acknowledging the holistic nature of mental health issues. She encourages healthcare providers to approach patients with compassion, help them understand their condition, and explore treatment options with fewer side effects. She also touches on the idea of self-actualization by referring to her customers as "goddesses," aiming to inspire self-celebration and self-awareness.Jeanne 's Website @jeanne_figgilife on Instagram Jeanne 's Facebook page The episode ends with a reminder that patients are not defined solely by their medical conditions; they are individuals with dreams, aspirations, and lives beyond their illnesses. Stay tuned for more engaging conversations on "The Patients Speak."Hosted by Mark Stinson, produced by BSB Mediawww.BioscienceBridge.com
Mark Stinson, host and co-author of "Patient Activation"
Sep 6 2023
Mark Stinson, host and co-author of "Patient Activation"
Welcome back to "The Patients Speak" podcast, where we blend the science and business of healthcare with the patient voice to accelerate the journey from diagnosis to wellness. In Episode 38, we kick off a new season by reviewing the book "Patient Activation: The Four Steps to Going from Awareness to Activation," co-authored by me and Bob Baurys. This resource aims to empower both healthcare professionals and patients, offering actionable steps to enhance patient engagement and activation. This podcast was actually inspired by the book, providing a platform for real-life examples of patient activation and insights into patients' minds. I'll provide a sneak peek of key points from the book, covering the foundation of patient activation, steps to activate patients, the ongoing process of activation, collaboration between providers and patients, and the transformative potential of patient-centered care. Join us as we explore these concepts through interviews and experiences from our guests in the previous season and those to come in Season 2.**Key Points from this Podcast Episode:**1. Patient Activation: The book emphasizes helping patients become active participants in their healthcare journey, enhancing patient engagement and empowerment.2. Steps of Patient Activation: The book outlines the patient activation process in stages, starting with locating and educating patients.3. Ongoing Process: Patient activation isn't a one-time event but a continuous journey that requires ongoing support and engagement.4. Collaborative Approach: Healthcare providers must shift from a paternalistic approach to a collaborative one, working with patients to develop personalized care plans.5. Transformative Potential: Patient activation has the power to transform healthcare by placing patients at the center of care, improving outcomes and enhancing the overall experience.*"Patient Activation" eBook Offer:*As a special offer, you can grab a copy of "Patient Activation" for just 99 cents on Kindle. This limited-time offer provides you with practical strategies, insights, and real-world examples to enhance patient engagement and empowerment. Don't miss out on this opportunity to learn how patient activation can revolutionize healthcare for the better.https://a.co/d/bRho4QbStay tuned for upcoming episodes in Season 2, featuring interviews with industry leaders, patient advocates, clinical researchers, and more. Thank you for joining us on this journey as we continue to amplify the patient voice and drive positive change in healthcare. Remember, when the patients speak, we all have a lot to learn. Hosted by Mark Stinson, and produced by BSB Mediawww.BioscienceBridge.com
Patrick Smith, Songs in Pharma Commercials
Aug 30 2023
Patrick Smith, Songs in Pharma Commercials
Songs in Pharma Commercials with Guest: Patrick Smith, Creative Director (Connect with Patrick on Instagram @smithdidit)In this podcast episode of "The Patient Speak," host Mark Stinson interviews Patrick Smith, a creative director, about the intersection of healthcare marketing and pop culture. The podcast explores how healthcare innovations are accelerating the patient journey and features discussions with healthcare leaders, patient advocates, medical providers, and researchers.The episode begins with a playful reference to TV commercials interrupting tense moments in TV shows. It introduces the idea of cross-fertilization between healthcare brands and pop culture, particularly in the context of drug commercials using popular songs.The episode features discussions on:Music in Drug Commercials: Patrick Smith and Mark discuss the trend of using classic rock songs in pharmaceutical commercials. They highlight the use of popular songs to enhance brand recall and create synergies between the brand promise and the song's themes.Branding and Borrowed Interest: They explore the concept of "borrowed interest" in advertising, where creative elements like jingles, characters, or illustrations are used to make the product more appealing. This approach is seen as a way to simplify complex healthcare stories and increase audience engagement.Lessons in Leadership and Creativity: Patrick talks about his transition from focusing solely on creative work to honing his leadership skills and refining insights. He emphasizes the importance of being at the forefront of campaign ideas and developing core concepts.Future Insights: Patrick shares his aspirations for his career, including increasing his role in leading campaigns and refining core ideas for clients. He talks about the importance of staying on the front lines of creative strategy.Personal Touch: The podcast concludes with Patrick's personal choice of a rock song by Van Halen that would represent his career in a hypothetical commercial about himself.Playlist of Featured Commercials:Ozempic (Type 2 Diabetes)Anoro (COPD)Toujeo (Diabetes)Trelegy (COPD)Farxiga (Type 2 Diabetes)Celebrex (Osteoarthritis)Repatha (Cholesterol management)This podcast episode provides insights into the creative and strategic aspects of healthcare marketing, specifically focusing on the use of music and pop culture elements to enhance brand recognition and engagement.All music and commercials are copyrighted and used under fair use for critique.Hosted by Mark Stinson, and produced by BSB Mediawww.BioscienceBridge.com
Dr. James Doty, Compassion and Altruism
Aug 23 2023
Dr. James Doty, Compassion and Altruism
Dr. James Doty is founder of the Center for Compassion and Altruism Research and Education at Stanford University, and author of the New York Times bestseller, "Into the Magic Shop."He discussed:- The importance of compassion and altruism, not just for patients' well-being, but also for healthcare providers' positive physiological effects.- The challenge of teaching compassion in medical schools and the positive impact of compassionate leadership on productivity and creativity.- The power of self-compassion and mindfulness exercises to shift from fear mode to a state of calmness and openness.- Dr. Doty's personal journey from despair to success, highlighting the transformative effects of self-compassion and positive intention.Key Highlights:1. Dr. Doty's journey from despair to success after learning mindfulness and self-compassion.2. The positive impact of compassionate leadership on productivity and well-being.3. The physiological benefits of being kind and caring towards patients in healthcare settings.4. The role of self-compassion in shifting from a fear mode to a state of openness and connection.5. The potential for everyone to develop and improve their compassion through mindfulness practices.6. Resources and programs at the Center for Compassion and Altruism Research and Education at Stanford University."When someone acts with kindness versus just treating them like a disease, it has a profound positive effect on their physiology. Compassion boosts the immune system and promotes healing.""The vast majority of people can improve their compassion. At Stanford, we've developed a compassion cultivation training program that fosters self-compassion and empathy for others.""Leaders who authentically believe in compassion foster psychological safety, unleashing creativity and productivity among their teams.""Each of us has the opportunity every day to make one person's life better. Let's create an environment that allows people to thrive."For more information on Dr. Doty's work, visit ccare.stanford.eduintothemagicshop.comjamesrdotymd.comTune in and change the world, one act of kindness at a time. Thanks for listening.
Highlights: Healthcare Authors
Aug 16 2023
Highlights: Healthcare Authors
Episode 35 of The Patients Speak Podcast: Highlights from Interviews with Healthcare AuthorsGuest 1 -- Surbhi Sarna, who began as an engineer but ultimately founded a company as its CEO, later becoming a partner at Y Combinator to mentor startups in the healthcare domain.*Prioritizing Patients in Innovation: Surbhi emphasizes the importance of putting patients at the forefront, an approach ingrained in her journey, where patients waiting for solutions drive determination through challenges.*Remembering Patients in the Process: Surbhi recalls that amidst late-night work and challenges, the reminder that patients were waiting for solutions motivated the team to persevere.*Impact on Startup Culture: Surbhi addressed startups and founders at Y Combinator, highlighting that patients are the driving force behind innovation, and their needs should remain paramount.*Personal Patient Experience**: Surbhi shares her personal journey with a health scare, leading her to advocate for women's health and wellness.Surbhi-SarnaGuest 2 -- Sushma Subramanian, a science and healthcare journalist and professor, discusses the sensory shift in medicine, from tactile-focused care to distant technology-driven examinations.*Comfort and Communication: Sushma emphasizes the comforting role of touch in patient-doctor interactions and the potential to incorporate sensory experiences for more patient-centric care.*Consumer Advocacy and Touch: Sushma explores the role of consumers in advocating for touch-centric care, suggesting that providers and patients can collaborate to enhance the patient experience.Sushma's Website Guest 3 -- Urvashi Bhatnagar, combining her Doctor of Physical Therapy background with a Yale MBA, addresses sustainability and health inequities within the healthcare system, underscoring patients' empowerment to drive change.*Climate Change and Health: Urvashi highlights the interconnectedness of climate change and human health, emphasizing the need for health systems to address environmental factors affecting patients.*Patient's Voice: Urvashi discusses patients' influential role in advocating for a sustainable and healthier environment, underscoring the importance of communication between patients and providers.Urvashi's Website Guest 4 -- Dr. Ann Hester, author of "Patient Empowerment 101," explains her motivation to bridge the gap between doctors' perspectives and patients' understanding, leading to better outcomes.*Balancing Power Dynamics: Dr. Hester discusses the power dynamic between doctors and patients, emphasizing patients' ability to be better prepared for medical interactions and contribute to their care.*Patients as Equipped Participants: Dr. Hester emphasizes the need for patients to be better prepared, allowing for more efficient medical visits, fewer unnecessary tests, and improved communication.Ann's Website Conclusion: The Patients Speak podcast is dedicated to amplifying the patient's voice within the healthcare landscape, engaging with leaders across various healthcare domains to facilitate meaningful change. Stay tuned for more episodes where we listen to … the patients speak.Hosted by Mark Stinson, and Produced by BSB Mediawww.BioscienceBridge.com
"Patient Lee" Tomlinson, Compassion Heals: From Self-Care to Healthcare
Aug 2 2023
"Patient Lee" Tomlinson, Compassion Heals: From Self-Care to Healthcare
In this episode, we have a heartfelt conversation with Lee Tomlinson, author of the book "Compassion Heals: From Self-Care to Healthcare." Lee shares his personal journey as a patient and the importance of compassion in healthcare. His story sheds light on the need for human connection and empathy between physicians and patients.Lee starts by expressing his gratitude for the opportunity to share his experiences and insights with the listeners. Having spent a significant amount of time in hospitals, Lee understands the dynamics between healthcare professionals and patients. His book aims to bring the patient's perspective and promote compassion in healthcare.Lee's journey began when he visited his ear, nose, and throat doctor for breathing problems before participating in a golf championship. Unexpectedly, he received a devastating diagnosis of stage three to stage four throat cancer. The subsequent intensive treatment and the additional challenges of a septic infection pushed Lee to the brink of despair.Feeling unsupported and lacking compassion during this difficult time, Lee contemplated ending his life. However, a pivotal moment came when his Doctor (and brother-in-law) visited him in the hospital. The doctor's heartfelt apology and encouragement to fight reignited Lee's will to live and inspired him to advocate for compassion in healthcare.Lee emphasizes that compassion is not just a heartfelt sentiment, but a scientifically proven force that can enhance healing outcomes. He cites studies and references the book "Compassion-omics," which explores the healing power of compassion and its positive impact on patients, healthcare providers, and the overall bottom line of healthcare organizations.Throughout his journey, Lee has shared his story and mission with various pharma companies, physician organizations, and hospitals, including Eli Lilly, Bristol-Myers Squibb, and UCLA Hospital. He finds therapeutic value in sharing his experiences and witnessing how his message resonates with others. His storytelling abilities, honed through his background in Hollywood studios and the film institute, allow him to convey his story in a compelling and impactful manner.Lee's ultimate goal is to ensure that patients receive the compassion they deserve while also advocating for the well-being of healthcare providers. He believes that compassion is a powerful tool for preventing burnout among healthcare professionals and urges them to prioritize self-care and kindness. Lee's mission has touched the hearts of many, prompting them to reflect on their own experiences and commit to being more compassionate in their roles.Highlight Quotes: "If you're lucky enough to live, how about you use your voice to communicate to healthcare professionals the absolute necessity of being treated with compassion and the power it has to heal you when it's present and the horrible impact when it's not." "When you are burned out, one of the greatest tools is just to go out and be kind... Being kind will heal you and your burnout." "It's nice to be nice. But it has immense, sometimes lifesaving and life-giving power that we ought to use for ourselves."If you're having an immediate suicidal crisis or emotional distress, I do want to remind you of the National Suicide Prevention Lifeline in the US. It's 1-800-273-TALK, and if you're listening elsewhere, please find your local suicide prevention line.
HIGHLIGHTS: Patient Advocates
Jul 12 2023
HIGHLIGHTS: Patient Advocates
Episode 33 -- Patient Perspectives: Smell & Taste, Genetic Diseases, Cancer, and Multiple MyelomaIn this episode of "The Patients Speak" podcast, host Mark Stinson engages in insightful interviews with four inspiring individuals who share their experiences as patients and advocates in different health conditions.·     Katie Boateng, head of the Smell and Taste Association of North America, discussing the importance of understanding the impact of smell and taste conditions on patients' daily lives.·     Seth Rotberg, an HD (Huntington's Disease) patient advocate, emphasizes the need for genetic counseling and collaboration between patients and clinicians in the treatment and research of genetic and rare diseases.·     Howard Brown, a two-time cancer survivor and author, shares his journey of resilience and hope in his memoir "Shining Brightly." He highlights the importance of forming a collaborative team and maintaining optimism while dealing with cancer.·     Yolanda Brunson Sarrabo, a multiple myeloma patient advocate, emphasizes the significance of patient empowerment and effective communication with healthcare providers. She encourages patients to ask questions, express emotions, and consider participating in clinical trials.Here are key quotes from each guest:1. Katie Boateng:"People want others to understand the enormous impact that smell and taste conditions have on their day-to-day lives. There seems to be a lack of empathy or understanding for how impactful these conditions can be."2. Seth Rotberg:"Genetic counseling is becoming more prevalent and important to know about the next steps. It's crucial to have the right resources and support when facing genetic and rare diseases."3. Howard Brown:"You gotta get up out of bed every day and push further and keep going. It's okay to sleep in bed one day; you gotta get back up the next day. Keep moving."4. Yolanda Brunson Sarrabo:"Everyone isn't a public speaker, but you can write down questions and use the nurses and healthcare team as resources. We need providers and researchers to find us, as there is a diverse range of patients with unique perspectives."Tune in to this enlightening episode as patients share their insights and advocate for better understanding and communication within the healthcare system.(c) 2023 BSB Media
HIGHLIGHTS: Digital Health Innovators
Jul 5 2023
HIGHLIGHTS: Digital Health Innovators
In this episode, host Mark Stinson interviews 4 digital health innovators who are making significant advancements in healthcare. Cassandra Hui from HealMaryMatt Schwartz from VirgoOlga Sasonova from NutrisenseNavid Alipour from AI Med GlobalEach guest shares their unique insights and experiences in using technology to improve patient outcomes and transform the healthcare industry. Here's a summary of the key points discussed:Guest 1: Cassandra Hui from HealMaryCassandra Hui, the founder of HealMary, shares her personal motivation behind creating the company. Having experienced the challenges of navigating treatment options for her family members who had cancer, she recognized the need for an easier way for patients and caregivers to access information and support. HealMary utilizes technology to simplify the process of finding treatment options and connecting patients with clinical trials.Quote: "It's not a technology play. It's about using technology to make it easier for people like myself who don't have a science background." - Cassandra HuiGuest 2: Matt Schwartz from VirgoMatt Schwartz, co-founder of Virgo, discusses how their company aims to improve patient outcomes in endoscopy procedures. They provide a cloud-based video capture and analysis platform that enhances the documentation and management of endoscopic procedures. By automating the video capture process and utilizing AI analysis, Virgo enables doctors to effectively review and utilize endoscopy videos for various purposes.Quote: "We provide the leading cloud video capture management and AI analysis platform for endoscopy." - Matt SchwartzGuest 3: Olga Sasonova from NutrisenseOlga Sasonova, an expert in data science and analytics, emphasizes the importance of utilizing data to gain a comprehensive understanding of patient experiences and outcomes. She explains how data can help uncover patterns and insights that may not be apparent through anecdotal experience alone. Olga focuses on the potential of tracking glucose levels as a vital sign in clinical trials and treatment efficacy prediction.Quote: "Data, if gathered across the right dimensions, can help you understand why you may be seeing certain outcomes." - Olga SasonovaGuest 4: Navid Alipour from AI Med GlobalNavid Alipour, co-founder of AI Med Global, highlights the significant advancements in precision medicine and the role of technology in improving patient outcomes. He discusses the importance of early detection, treatment, and monitoring in enhancing patient care. AI Med Global specializes in developing detection technologies for breast cancer and heart disease, as well as providing personalized treatment recommendations based on a patient's specific molecular profile.Quote: "Early detection is so critical... knowledge is power, and that allows decades of life to that individual." - Navid AlipourThese digital health innovators are revolutionizing healthcare by leveraging technology and data to improve patient care, enhance treatment outcomes, and simplify access to medical information. Through their innovative solutions, they are addressing the needs and challenges faced by patients, caregivers, and healthcare professionals in today's rapidly evolving healthcare landscape.(c) 2023 BSB Media
Mid-Year HIGHLIGHTS: Physicians & Researchers
Jun 21 2023
Mid-Year HIGHLIGHTS: Physicians & Researchers
Episode: Physicians' Views on Overcoming Obstacles to Patient CommunicationsSummary:In this episode of Patient Speak Healthcare Innovations, host Mark Stinson interviews healthcare leaders and advocates on overcoming obstacles to patient communications -- and improving patient care. Host:Mark Stinson - Bestselling authorGuests:Dr. Alen Voskanian - Physician and Medical Executive, Author of "Reclaiming the Joy of Medicine"Viewpoint: Addressing physician burnout is crucial for improving the patient experience.Quote: "Burnout causes a lack of ability for physicians to extend compassion and empathy to their patients when their tank is empty."Dr. Maria DeLeon - Physician and Parkinson's Disease Patient, AdvocateViewpoint: Listening to patients and improving access to essential medications is crucial for better care.Quote: "If we can't even have the basic medications available, then we're in trouble."Dr. Peter Small - Chief Medical Officer at HyfeViewpoint: Real-time monitoring of symptoms, such as cough, can improve patient selection for clinical trials.Quote: "The ability to know passively and in real time how much people are coughing... I think this is something that contract research organizations will jump on."Dr. Mark Pimentel - Gastroenterologist, Researcher, and Founder of a new breath test for IBSViewpoint: Advancements in understanding the microbiome can lead to precision medicine for IBS patients.Quote: "We now know exactly who the bugs are... the treatment window for better and new things is wide open."Subscribe to the Patient Speak podcast on your favorite podcast app to listen to more episodes on healthcare innovations and the patient journey.